Tag Archives: Heidi

One Year Later

Anxiety looks like this:

Three sisters on speaker phone for the hour and a half leading up to The Call, when the doctor will say if the cancer is back or not.

The one-year bone marrow biopsy was done twelve days ago. One sister had a bad feeling about it. One sister had a good feeling about it. But an hour and a half from The Call, everyone has a bad feeling about it.

Two of the sisters are together in a backyard in Chicago. The other sister is in Boston. The two sisters in Chicago sit on the steps facing the backyard with a plate of vanilla wafers, passion fruit curd to dip them in, and toasted coconut flakes. The sister in Boston is also outside in her yard. Her cat is napping in the sun on some rocks. She just moved there, and as the sisters talk, the movers are inside, unloading furniture and boxes, setting up the pieces of her life that have moved so often, and so far, from Alabama to Alaska to Hawaii, from California to Cameroon and then to Madison, where two and a half years of pain and grief have carved something deep into the sisters’ hearts.

If The Call goes one way, a kidney transplant will bring two of the sisters together in a few months. One will give a kidney and one will get a kidney, and it’s strange to say that such an event would be a dream-come-true, the fulfillment of years of crushing disappointment and wafer-thin hope, but it is. As kids, they dreamed of a lot of things–horses and boys, first kisses and beautiful dresses–but getting kidneys wasn’t one of them, so this is a surprise.

If the Call goes the other way, it will be time to face death. They’ve faced it before over these two and a half years, but this time, there would be a finality to the story. There will be no second bone marrow transplant. If the cancer is back, the ending begins.

In an hour and a half, their lives could change forever. It’s a strange feeling, to be a breath away from such a moment. (And is there anything as life-changing as death?) The world feels both a little pretend and a lot lethal. It could crumple like paper, or stab you in the heart.

Erica and I sit in her backyard together, feeling faint and sick one minute, faint and weepy the next, faint and slap-happy after that. We’re killing time with Heidi on speaker phone, because it’s unthinkable to do anything else, to do anything normal, not when we’re this close to the edge. So we start talking about butts. It starts with someone alluding to that classic elementary school math problem. If Train A leaves the station at a velocity of 90 mph, and train B leaves from the other station . . . except trains become asses.

The Eastward-facing ass is traveling at a rate of three knots. What will be the force of its collision with the Westward-facing ass given the wind resistance and relative body mass ratios of each ass?

The asses are soon colliding past each other, breaking the space-time barrier, and time-traveling into the past. Time-traveling asses lead to the collapse of the space time continuum, with pauses in our little armageddon story to remark on the true origins of the Grand Canyon. All of this traveling ass humor is delivered in our “Chicketarian” voice (™) which is a dead ringer for Christopher Walken. We laugh so hard we almost pee our pants. We briefly panic when Heidi gets an incoming call (it’s Dr. Hall! The cancer is back!), but then it’s just prescription refills and we proceed. “As the old proverb says, ‘A greased ass travels fast’ . . .” We laugh and eat wafers and watch Erica’s chickens. One of them digs three holes in the yard. We keep waiting for her to take one of her legendary dirt baths, but she doesn’t seem interested in anything but her digging, with brief interludes to terrorize the other three chickens.

The weather is perfect in Boston and Chicago. Sunshine and a gentle breeze, warm but not hot.

Every now and then we check the time. Fifteen minutes until The Call (will he be late? Do you promise to text right away?). Five minutes. He calls. “Gotta go.” Click.

Erica and I sit on the steps in the shade, the chickens and the sunshine before us. But we can’t remain there. She hops up to do something in the yard, and I compulsively look at my phone.

If she doesn’t text for a long time, that must mean bad news . . .

How long is a long time?

We get a thumbs-up text from Heidi’s husband five minutes in. This seems promising. But still too tenuous. We need more. We are freaking out. We haven’t stopped freaking out for hours.

Heidi calls. There is no cancer.

No cancer.

No.

Cancer.

Ahhh.

All three markers they check are one hundred percent clear.

We don’t have to cry tonight.

We don’t have to rage and fall apart and limp back to our anti-depressants.

We don’t have to plan an emergency trip to Boston because you could never hear the news your sister’s death is imminent and not hop on a plane.

We get to hang up after a few celebratory whoops, rise from the steps, and go back to our days. I log back onto my laptop to check my work email. Erica fires up the sewing machine. Then she goes to get her kids from school and I come back home.

The day is normal.

The sun is shining.

The news doesn’t feel real.

Good news is like that. Anti-climactic. Where bad news is a punch. And after the tortuous adrenaline storms, the horribleness of the punch sometimes fits better than the gentle caress of good news.

It’s a relief . . . but somehow it doesn’t feel as full and as happy as I want it to.

Yet.

That’s okay. I’ll save it like a stone in my pocket and slip my hand against it as the day goes on, feel its edges, feel its weight, feel the warmth of my own hand on its surface.

And I’ll repeat it back to myself, over and over:

That she is not dying. My sister is not dying. Not today.

Transplant Day

It’s the day we’ve been waiting for for the past year and a half. Today at 10am, Heidi gets hooked up with needles and infused with the bone marrow Erica donated a few weeks ago. From here, we enter the highest risk part of her journey. But it’s also the moment that her journey of recovery can finally begin.

Of course, we had no idea it would take a year and a half to get to this point. We imagined a couple months–maybe three at most. It’s a good thing we couldn’t see into the future or we might have despaired tons earlier.

From the beginning, Heidi received a prophetic word from her good friend Amanda, who has been a steady source of encouragement for all of us since cancer hit. You can read about that here, but it was essentially Isaiah 54, the promise of complete healing and that God would further Heidi’s ministry through this.

It’s been a long time since I’ve opened to Isaiah 54, but this morning, on Day Zero, it felt appropriate. As I sat in my robe, drinking coffee and looking out at the summer-green trees lining our street, the familiar words hit me in a fresh way.

For the children of the desolate woman will be more
than the children of her that is married, says the Lord.
Enlarge the site of your tent,
and let the curtains of your habitations be stretched out;
do not hold back; lengthen your cords
and strengthen your stakes.

The word ‘desolate’ hit me. We didn’t really know what that felt like in December of 2018. But now? Absolutely. And yet right there is the promise that the desolate woman will bear more fruit than the ‘married’ one–the one who has been happily chugging along as planned. Enlarge the site of your tent. Heidi’s pain and suffering WILL bring people to God. Her spiritual house will grow larger–she’ll have to expand–because God will bring more people than she could ever have planned for.

Years ago, way before cancer, Heidi told me that she felt deeply convicted that her ministry wasn’t just being a great mom and raising her kids in the way of Jesus–she felt the calling of Isaiah 49: “It is too light a thing that you should be my servant to raise up the tribes of Jacob…I will give you as a light to the nations, that my salvation may reach to the end of the earth.”

These verses thrilled Heidi. To the end of the earth! And here in Isaiah 54 is that promise–that her cancer journey will tie into this calling she felt long ago. That her house will expand in a way that wouldn’t have happened if she had been the ‘happily married’ woman pictured, with the normal life. Her desolation will produce growth and multiplication.

Do not fear, for you will not be ashamed;
do not be discouraged, for you will not suffer disgrace;
for you will forget the shame of your youth,
and the disgrace of your widowhood you will remember no more.
For your Maker is your husband,
the Lord of hosts is his name;
the Holy One of Israel is your Redeemer,
the God of the whole earth he is called.

I am terribly afraid we will end up being fools. That we might be one of those stories of “Oh yeah, they thought that God spoke, but … well, it was a self-comfort mechanism, so let this be a cautionary tale about not speaking lightly about ‘hearing God’.” And yet I see the reminder of ‘you will not be ashamed’ and ‘you will not suffer disgrace’ … and I’m comforted.

Not to mention the disgraces of cancer–the pain, the needles, the weakness, the awful suffering–Heidi will remember no more. That’s how big her Redeemer is.

For the Lord has called you
like a wife forsaken and grieved in spirit,
like the wife of a man’s youth when she is cast off,
says your God.
For a brief moment I abandoned you,
but with great compassion I will gather you.
In overflowing wrath for a moment
I hid my face from you,
but with everlasting love I will have compassion on you,
says the Lord, your Redeemer.

This is the one that got me. For a brief moment I abandoned you. For a moment I hid my face from you. If you’ve read any of my recent blog posts, you’ll know this is exactly (and I mean exactly) how I’ve felt. Abandoned and forgotten by God. Cast aside. And then I read this heartening promise–but with great compassion I will gather you. Yes, God! Gather us up!

O afflicted one, storm-tossed, and not comforted,
I am about to set your stones in antimony,
and lay your foundations with sapphires.
I will make your pinnacles of rubies,
your gates of jewels,
and all your wall of precious stones.

If there are any words that can describe our journey, but mostly Heidi’s, it’s afflicted, storm-tossed and not comforted.

And then, these words from God … I AM ABOUT TO. Things are about to change. Something big is about to happen.

I was sharing these thoughts with Erica as we talked on the phone while I drove to work this morning. Suddenly Erica said, “now my dream makes sense!”

(Okay, this is when I really start crying)

Last night she dreamed that us three sisters were getting ready to head out of town for a sisters’ weekend together–grocery shopping, getting treats, that kind of thing. Then, Lauren (the transplant coordinator in real life) called Erica and said, “It’s time!” Part of the weekend was going to be the transplant. We were in the parking lot of our apartment complex, where the transplant was going to happen, and there was a tube connecting Heidi and Erica. But it wasn’t blood or bone marrow traveling through the tube–it was life essence flowing between them.

At this point, there were lots of people around. Then, everyone started having babies–people of every color and nationality–people Erica didn’t know or recognize. Erica was having kids, the transplant coordinator suddenly had four children. People were getting pregnant right and left. Erica went over to some friends’ house, and they were like, “oh my gosh, we totally had this baby because of that!”

As Erica described a dream that she at first had thought was just kind of silly, we suddenly realized it was about Isaiah 54. Spiritual fertility. Heidi’s cancer journey resulting in spiritual life and birth that will multiply beyond what Heidi can imagine. The calling Heidi felt in Isaiah 49 all those years ago, fulfilled. To the end of the earth.

I’m terrified. I’m trusting. I’m comforted. And still terrified. Adrenaline buzzes through me every time I remember that today is The Day. I can hardly catch my breath. I want to cry, and I can hardly gather a sentence together to pray coherently. In the end, I only have these words–

God, do what you said.

And I hear the response of Psalm 33–

Let all the earth fear the Lord;
let all the inhabitants of the world stand in awe of him.
For he spoke, and it came to be; he commanded, and it stood firm.

Amen, and let it be so!